European Network of Cancer Registries - ENCR Working Group on Treatment Data

▪ Working groups to examine specific topics and ▪ Make recommendations on common rules and definitions to European cancer registries 2 ENCR Working Group on Treatment Data Harmonisation June 2021: set up of the WG ▪ Bring together European experts in cancer registration, epidemiology and from the clinical field ▪ Discuss and draft guidelines for improved data collection and harmonisation of treatm. [...] 3 Treatment data availability • Overview of the status of using and reporting treatment data in population-based cancer registries • Literature review • 2015 ENCR-JRC data call questionnaire • Treatment data provided for the 2015 ENCR-JRC data call 4 Literature Review Data Questionnaire 5 Treatment Data Recording (phase I) ▪ Circulated by ENCR ▪ Feeback until November 20 6 Treatment definition ▪ F. [...] Variable description Format Missing/ Coding unknown Surgery F 9 0→No 1→Yes, not specified 2→Yes, local surgery only 3→Yes, 'operative' surgery Day of surgery F 99 Range of allowed values: From 1 to 31 Month of surgery F 99 Range of allowed values: From 1 to 12 Year of surgery F 9999 ≥ Year of incidence Hospital of surgery A 9 National coding system F: Numeric variable A: Alphanumeric variable 9 Ra. [...] Variable description Format Missing/ Coding F 99 Range of allowed values: Day of radiotherapy start unknown F 9 0F rom N 1o to 31 → Radiotherapy F 99 Range of allowed values: Month of radiotherapy start 1 → Yes F 9 1F rom→ R a1d tioo t1h2e rapy only Year of radiotherapy start F 9999 2≥ →Ye aYre os,f ninecoiaddejnucvea nt (pre-operative) F 99 rRaadniogteh oefr apllyo wed values: RDaadyi ootfh reard. [...] Variable description Format Missing/ Coding unknown Stem cell transplantation (SCT) F 9 0 → No 1 → Yes Day of SCT F 99 Range of allowed values: From 1 to 31 Month of SCT F 99 Range of allowed values: From 1 to 12 Year of SCT F 9999 ≥ Year of incidence 13 Reason for no treatment Table 5.