A proposal of Cancer Data Quality Checks: one common procedure for European Cancer Registries

To facilitate the submission and improve the quality of CRs data, the ENCR-JRC recommend checking beforehand the format of required files and the internal consistency of the incidence data using the JRC-ENCR Quality Check Software (QCS) (see Section 3.1.6). [...] The Geo_label is the name of the geographical area corresponding to the Geo_code in the NUTS classification. [...] The CRs should use day, month and year of the date of incidence and the date of last known vital status to calculate the duration of the survival in days. [...] The specific code in the header of this file may be used to access the questionnaire in the event of submission of updated datasets where any of the information provided should be updated according to the new dataset. [...] For childhood cancers, where the numbers are more unstable compared to adults given they are based from the lower occurrences encountered in children, not showing the aggregated numbers and maybe presenting only rates would hamper comparability (due to the instability of the rates when computed from small background populations) and the possibility to hint to the magnitude of the problem in the di.