cover image: Our Commitment to Research Our Commitment to Research

Our Commitment to Research Our Commitment to Research

2023

Since our first funded research project in 2009, Apraxia Kids has played a major role in the research community by funding research on various CAS topics including assessment, treatment, and social-emotional factors across the lifespan and with diverse populations. We are pleased to share the results of all of the grants we have funded on our Research Grants webpage. [...] Research is necessary for clinicians to have guidance about best practices for assessment, diagnosis, and treatment in order to make the best decisions for each child with CAS. [...] The ultimate goal is to have studies that incorporate a large number of children with CAS and that include long term follow-up. [...] Another way Apraxia Kids supports research is to give researchers who specialize in CAS a platform to come together and have meaningful discussions about the current state of research. [...] As the leading organization focused on childhood apraxia of speech, Apraxia Kids has facilitated three Research Symposiums, bringing together researchers from across the globe to share their current research along with making recommendations for what future research is needed in the field. [...] This paper synthesizes the symposium round table discussions and shares the joint research recommendations of the symposium attendees. Our Commitment to Research Our Commitment to Research "The Apraxia Kids Doctoral Grant played a pivotal role in my research. [...] “How do we conduct the research?” which recommends adopting a “big science approach” using multiple sites, open access data repositories, and standardized data collection across research teams. Most importantly, this theme recommends that researchers ask people with lived experience of CAS to design, run and report on research with them. [...] This new approach asks researchers to design their studies from the beginning with the end user, clinician, or parent, in mind and is aimed at improving how soon research findings are translated into on the ground practice. [...] Research is a much-needed collaboration between researchers, clinicians and families so that children receive the services needed to find their voice. [...] The grant has allowed us to travel to several clinics across the country and collect data on motor difficulties of a large sample.
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United States of America