AHDR Annual Report 2020 Introduction Changes in 2020 Presentations and publications

MCRI A4 Fact Sheet AHDR Annual Report 2020 Introduction David O’Keefe: Junior Doctor in Obstetrics & Gynaecology at the Mercy Hospital for Women The Australian Hand Difference Register (AHDR) is a David did a project titled: “Prenatal and postnatal database of children born with an upper limb diagnosis of Congenital Hand Differences: The first 3 difference. [...] Controversies in Congenital Hand Difference 2020 also saw the introduction of an updated version of Classifications the Oberg Manske Tonkin (OMT) classification system. [...] Clinical Registries and Congenital Hands Genetic Counselling student Asia-Pacific Federation of Societies of Surgery of the Hand Meeting, Melbourne 2020 This year Saskia completed a research project titles “The perceptions of genetic testing among families with a history of Congenital Upper Limb Difference (CULD)”. [...] The and found that participants identified a range of psychosocial impact of congenital hand and upper limb benefits and disadvantages to genetic testing. [...] decision to make…” (Gail, mother of child (Anna, mother of child with isolated CULD) with isolated CULD) Murdoch Children’s Research Institute T +61 3 9936 6766 50 Flemington Rd, Parkville E ahdr@mcri.edu.au Victoria 3052 Australia W mcri.edu.au/ahdr ABN 21 006 566 972 Summary of data held in the AHDR (as of 31st December 2020) There are 874 children registered on the AHDR.