Quick Facts as of June 30, 2024

About PRF The Progeria Research Foundation (PRF) was established in 1999 by Drs. Leslie Gordon and Scott Berns, the parents of a child with Progeria, along with many dedicated friends and family who saw the need for a medical research resource for the doctors, patients, and families of those with Progeria. [...] PRF has developed programs and services to aid those affected by Progeria and the scientists who conduct Progeria research. [...] Today, PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria. [...] PRF is hailed as a prime example of a successful translational research organization, moving from creation, to gene discovery, to first-ever drug treatment in just 13 years. PRF’S PROGRAMS & SERVICES ❖ First-Ever Progeria Clinical Drug Trials and Treatment: PRF-Sponsored Clinical Drug Trials bring children from around the world for promising treatments that may help to improve disease and e [...] The support we have received made the Progeria gene discovery, the Progeria clinical trials, the first- ever treatment for Progeria, and all of our other extraordinary progress possible. [...] PRF has collected an impressive 214 cell lines from affected children and their family members worldwide including 10 Induced Pluripotent Stem Cell(iPSC) lines. ❖ Medical & Research Database: The Database is a centralized collection of medical information from Progeria patients worldwide. [...] With a prominent global presence, PRF eliminates barriers to communication for patients and their families from around the world. [...] Berns, Sam’s father, is a co-founder of The Progeria Research Foundation and serves as Chairman of the Board. [...] He is a Board Certified Pediatrician and Clinical Professor of Pediatrics at the Alpert Medical School of Brown University. [...] He is also President and CEO of the National Institute for Children’s Health Quality, an independent, nonprofit organization working to improve children’s health.