Canada’s Strategy for Patient- Oriented Research (SPOR) - An Overview and Update

PowerPoint Presentation Canada’s Strategy for Patient- Oriented Research (SPOR) An Overview and Update NAPCRG Patient and Clinician Engagement (PaCE) Workshop November 21, 2014 Nancy Mason MacLellan Manager, Major Initiatives, Canadian Institutes of Health Research CANADIAN STRENGTHS Canada Excels In All Health Research Sectors Clinical Medicine Biology Public Health and Health Services Biomedical. [...] Research Collaboration Source: The State of Science and Technology in Canada 2012 3 CANADIAN CHALLENGES 4 EVIDENCE “The international experience with engaging citizens and patients in research has shown that involving them early in the design of studies, ideally as early as at the planning stage, leads to better results.” Methods for Involving Patients in Topic Generation for Patient-Centered Comp. [...] Patient-oriented research aims to ensure that the right patient receives the right intervention at the right time 6 PRINCIPLES • Patients need to be involved in all aspects of the research to ensure questions and results are relevant and integrated into practice • Decision-makers and clinicians need to be involved throughout the entire research process to ensure integration into policy and practic. [...] 14:89 15 PATIENT ENGAGEMENT Occurs when patients meaningfully and actively collaborate in the governance, priority setting, and conduct of research, as well as in summarizing, distributing, sharing, and applying its resulting knowledge In response to the SPOR Patient Engagement Framework published in June 2014, the CIHR Citizen and Patient Engagement Implementation Strategy is introducing a number. [...] Preparatory Model for PE in Patient-Oriented Research • C&PE Community of Practice PE Tools and Resources Ensure tools and resources are available to citizens and patients to help prepare them to effectively contribute to/participate in CIHR programs/processes and POR • Orientation Resources • Jargon Buster • Online orientation tutorial to support CIHR governance committees and boards • Curriculum.