FRAGILE X INFO: SIBLINGS

943466_SiblingsInfoSeries_WebFriendly_011321 NATIONAL FRAGILE X FRAGILE X INFO: SIBLINGS FOUNDATION Overview Fragile X is a group of conditions associated with changes in the Fragile X gene - called FMRl and located on the X chromosome. [...] The Sibling Relationship The sibling relationship can be one of the closest and most enduring relationships in a person's life, leading to countless rewards, support, and growth. [...] Not only must they meet the challenges posed by the sibling relationship, but they also face the possibility that their sibling symbolizes their future as a parent of a child with FXS. [...] Siblings Without FXS Siblings not affected by FXS and who do not carry the gene mutation may experience a type of "survivor's guilt." They may ask, "Why did I inherit a normal X chromosome while others in my family did not?" They may be more likely to feel an obligation to help care for the sibling and pressure to succeed. [...] About the NFXF The National Fragile X Foundation (NFXF) was founded in 1984 to support individuals with Fragile X syndrome (FXS), their families, and the professionals who work with them.