Tuffrey-Wijne I (2016) Palliative care for people with intellectual disabilities: the EAPC White Pap

Irene Tuffrey-Wijne explains how it was put together, what it contains, and why it is pivotal in the care of people with intellectual disabilities at the end of life This article gives an overview of the have difficulty in communicating physicalbackground, development and content problems, making it more difficult to recogniseof the White Paper on palliative care for illness and treat symptoms. [...] Members of the EAPC Taskforce The Taskforce found that much of the on Palliative Care for People with identified good practice depends on the Intellectual Disabilities dedication of individual practitioners, rather • Irene Tuffrey-Wijne (chair), UK than on effective organisations or policies. [...] End-of-life and palliative care for people The White Paper collates the insights, with intellectual disabilities who have cancer or other life-limiting illness: areview of the literature and available resources. [...] The confidence and attitudes of staff to the provision of palliative care to peoplewith intellectual disabilities. [...] Defining consensus norms for organisations involved in supporting people palliative care of people with intellectual disabilities in Europe, using Delphi with intellectual disabilities at the end of methods: a White Paper from the European Association of Palliative Care(EAPC).