vii, 11 p.
Authors
- Citation
- World Health Organization . (2024). Guidance for human genome data collection, access, use and sharing. World Health Organization. https://iris.who.int/handle/10665/379554 . License: CC BY-NC-SA 3.0 IGO
- ISBN
- 9789240102149 (electronic version) 9789240102156 (print version)
- Pages
- 22
- Published in
- Switzerland
- Rights
- CC BY-NC-SA 3.0 IGO
- Rights Holder
- World Health Organization
- Rights URI
- https://creativecommons.org/licenses/by-nc-sa/3.0/igo
Table of Contents
- Guidance for human genome data collection access use and sharing 1
- Guidance for human genome data collection access use and sharing 3
- CONTENTS 5
- FOREWORD 6
- ACKNOWLEDGEMENTS 7
- GLOSSARY 9
- 1. INTRODUCTION 11
- 2. PURPOSE AND SCOPE 12
- 3. PRINCIPLES FOR HUMAN GENOME COLLECTION ACCESS USE AND SHARING 14
- 3.1. To affirm and value the rights of individuals and communities to make decisions 14
- Recommendations 15
- 3.2. Social justice 16
- Recommendations 16
- 3.3. Solidarity 17
- Recommendations 17
- 3.4. Equitable access to and benefit from human genome data 17
- Recommendations 17
- 3.5. Collaboration cooperation and partnership 18
- 3.6. Stewardship of human genome data 18
- Recommendations 18
- 3.7. Transparency 19
- Recommendations 19
- 3.8. Accountability 20
- REFERENCES 21
