WP2 STUDY & ANALYSIS D2.4 ETHICS, LAW AND FUNDAMENTAL RIGHTS REPORT

As mentioned in the preamble of the UN Universal Declaration of Human Rights, one of the principal aims was to recognise the “inherent dignity and […] equal and inalienable rights of all members of the human family to freedom, justice and peace in the world”. [...] […] The Union contributes to the preservation and to the development of these common values while respecting the diversity of the cultures and traditions of the peoples of Europe as well as the national identities of the Member 1 Council of Europe. [...] II Freedoms Right to liberty and security; Respect for private and family life; Protection of personal data; Right to marry and found a family; Freedom of thought, conscience and religion; Freedom of expression and information; Freedom of assembly and association; Freedom of the arts and sciences; Right to education; Freedom to choose an occupation and the right to engage in work,; Freedom to cond. [...] In an effort to provide more substance on those fundamental rights from a medical perspective and for the purposes of the present report, it is important to draw attention to the WMA Declaration of Lisbon on the Rights of the Patient (WMA, 1981)6, which touches upon many of the fundamental rights and freedoms discussed earlier in the context of the CFREU, under the lens of medical ethics and withi. [...] According to Gostin and Berkman (2008), to avoid discrimination and to ensure proportionality, public health officials should inform the affected individuals about the reasons for the infringement of privacy, the intended use of the information and the extent to which third parties will have access to the data.