Acknowledging the legacy of This historical and contemporary legacy of Aboriginal and Torres Strait Islander leadership in unethical research practice has resulted in a lack prioritising and advancing Aboriginal and Torres of trust in research and researchers by Aboriginal Strait Islander human research ethical principles, and Torres Strait Islander communities, amid values, and guidelines, it is. [...] doi: 10.5694/mja2.51757 the rights and responsibilities of Aboriginal and Torres Strait Islander people and communities to be involved in all aspects of research that concerns them, and that research is safe and respects the values, diversity, priorities, needs and aspirations of Aboriginal and Torres Strait Islander peoples and communities. [...] In principles and guidelines 1987, a workshop on Ethics of Aboriginal Health With growing recognition by Aboriginal Research was convened in Camden NSW by and Torres Strait Islander and mainstream the NHMRC with the express aim of developing health research authorities of the need to a set of ethical guidelines and working out the improve the responsiveness of research and mechanisms by which thes. [...] undertaken with Aboriginal and Torres Strait Islander people and community respects the The AIATSIS (2020) Code provides guidelines for shared values of Aboriginal and Torres Strait ethical research practice that respects the rights Islander peoples, is relevant and meets the and interests of Aboriginal and Torres Strait needs and priorities of Aboriginal and Torres Islander communities. [...] principles and guidelines for Approval from the AH&MRC HREC is required when research involves Aboriginal and Torres Aboriginal and Torres Strait Strait Islander people in New South Wales and Islander health research any of the following apply (AH&MRC 2020: 8): • the experience of Aboriginal people is an Acknowledging the diversity of Aboriginal explicit focus of all or part of the research and To.
- Pages
- 36
- Published in
- Australia
Table of Contents
- Discussion paper 1
- Contents 3
- List of abbreviations 4
- List of figures 4
- Executive summary 5
- Background The Murru Minya Study 7
- Introduction 8
- Objectives 8
- Ethics 9
- Research ethics 9
- Unethical human experiments 9
- Key terms and context 9
- Declaration of Helsinki 10
- National Health and Medical Research Council NHMRC 10
- Statement on Ethical Conduct in Human Research 10
- Ethical approval 10
- Research governance 11
- Aboriginal and Torres Strait Islander research governance 12
- Aboriginal and Torres Strait Islander peoples experiences of health research 13
- Current principles and governance for ethical research in Aboriginal and Torres Strait Islander health 13
- The development of Aboriginal and Torres Strait Islander ethics principles and processes 14
- Overview of Aboriginal and Torres Strait Islander ethical principles and guidelines 16
- National ethical principles and guidelines for Aboriginal and Torres Strait Islander health research 18
- Ethical conduct in research with Aboriginal and Torres Strait Islander Peoples and communities Guidelines for researchers and stakeholders NHMRC 2018a 18
- Early development 18
- Recent revisions 18
- AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research AIATSIS 2020 19
- State-based ethical principles and guidelines for Aboriginal and Torres Strait Islander health research 20
- AHMRC Ethical Guidelines Key Principles 2020 V2.0 AHMRC 2020 20
- South Australian Aboriginal Health Research Accord Companion Document 2014 Version 2 revised 2021 Morey 2021 21
- Congress Research Core Values CAAG 2022b 22
- Local ethical principles and governance for Aboriginal and Torres Strait Islander health research 22
- Principles of KAHRA KAHRA 2022 23
- Waminda South Coast Womens Health and Wellbeing Aboriginal Corporation 24
- Inala Indigenous Health Service Southern Queensland Centre of Excellence in Aboriginal and Torres Strait Islander Primary Health Care 24
- Aboriginal and Torres Strait Islander specific HRECs and sub-committees in Australia 25
- Processes for obtaining ethical approval of Aboriginal and Torres Strait Islander health research 25
- Northern Territory Aboriginal Sub-Committee 25
- Kimberley Aboriginal Health Planning Forum Sub-committee 26
- Challenges 27
- CASE STUDY FOR OBTAINING ETHICAL APPROVAL MAYI KUWAYU 29
- From principles to practice are Aboriginal and Torres Strait Islander ethical principles being upheld 30
- Representation of Aboriginal and Torres Strait Islander people on HRECs 30
- How can we be assured that the spirit and integrity of NHMRC Ethical Guidelines are upheld without Aboriginal and Torres Strait Islander people being represented on every HREC 30
- If were not on the committees is there Aboriginal and Torres Strait Islander oversight of Aboriginal and Torres Strait Islander health research 30
- Duplication of ethics approval processes for multi-jurisdictional and national research 31
- CASE STUDY OF ETHICS APPROVAL PROCESSES FOR MULTI-JURISDICTIONAL RESEARCH NATIONAL INDIGENOUS EYE HEALTH STUDY 32
- Recommendations 34
- Where to from here 34
- Reference list 35