This report highlights some key considerations to support those using CIHI data for analyses of drugs for rare diseases and explores opportunities to improve data to support these analyses.
- Pages
- 21
- Published in
- Canada
Table of Contents
- Table of contents 3
- Acknowledgements 4
- Introduction 4
- Background 4
- About this report 4
- Considerations when using CIHI data for rare disease analysis 5
- Can we identify patients? 5
- How do patients interact with the health care system? 7
- How do disease characteristics impact analysis? 10
- Opportunities to enhance analysis for rare diseases at CIHI 13
- Conclusion 16
- Related resources 16
- Appendix: Overview of selected CIHI databases 17
- References 19
