cover image: A national health data research capability to support COVID-19 research questions - 15 April 2020

20.500.12592/3fzrsw

A national health data research capability to support COVID-19 research questions - 15 April 2020

17 Apr 2020

Information Governance and access The discovery, access, authentication and analysis process has the following components: • Understanding of datasets: The Health Data Research Innovation Gateway, will be the open source way of researchers understanding the availability of datasets and how to access them. [...] • Audit trails: for all queries and activities and the resources to analyse and publish on the use of the data • Public transparency: including publication of data access requests granted, stating the datasets, the research question, the legal purpose and the name of the organisation. [...] 6 The UK Health Data Research Alliance network of patient and public advisory groups will be asked to involve patient and public representatives in the design of this approach and the access decision making processes to ensure they are trustworthy. [...] NHSD, SAIL, the Scottish National Data Safe Haven and the BSO Honest Broker Service will be responsible for ingesting data flows, data linkage, operating the TRE in line with the Five Safes model, and managing the access management process in a secure and rapid way to respond to the priority questions. [...] Ethnicity, gender) and cardiovascular medication on outcome in COVID 19 infection? (2) What are the cardiovascular complications of COVID 19 infection? (3) What is the impact of the NHS, public health and population response to the COVID 19 crisis on non- COVID diseases, in particular on the presentation, management and outcomes of other cardiovascular diseases? (4) What are the molecular/multi-om.

Authors

Caroline Cake

Pages
14
Published in
United Kingdom