A proposal of Cancer Data Quality Checks: one common procedure for European Cancer Registries

The present document details the guidelines for the data submission to the JRC, providing detailed instructions on the content and process of the submission through the fully automated and secured JRC-ENCR portal. [...] To facilitate the submission and improve the quality of CRs data, the ENCR-JRC recommend to check beforehand the format of required files and the internal consistency of the incidence data using the JRC-ENCR Quality Check Software (QCS), latest version (1.8.1) available and freely downloadable here. [...] The process of pseudonymisation is responsibility of the registries, and must be carried out at the registry level prior to submission of the incidence file. [...] The CRs should use day, month and year of the date of incidence and the date of last known vital status to calculate the duration of the survival in days. [...] the background mortality in the general population of the administrative territory covered by the cancer registry, must be provided by registries covering their entire period of incidence or the period in which the follow-up is available.