Connecting - the Dots - Expert Panel on Health Data Sharing

Within this context, the Public Health Agency of Canada (PHAC; hereafter “the Sponsor”) asked the CCA to convene an expert panel to look at the socioeconomic impacts of health data sharing in Canada, focusing on the benefits and risks associated with the increased sharing of health data; legal and regulatory considerations related to health data governance; and opportunities to implement solutions. [...] What are the opportunities for maximizing the benefits of health data sharing? To answer the charge, the Panel assessed evidence and looked to members’ own experiences to identify ways to maximize the benefits of health data sharing. [...] The application of big data analytics and artificial intelligence to health data has the potential to drive innovations that improve both the quality of healthcare and the efficiency of health systems, while simultaneously creating economic value. [...] The CCA was asked to answer the following question and sub-questions: What are the opportunities for maximizing the benefits of health data sharing? • What are the socio-economic impacts of the current approach to health data sharing across Canada? • What are the risks associated with both maintaining and enhancing health data sharing across Canada? 1.2 The Panel’s Approach To answer the charge, t. [...] 4 | Council of Canadian Academies 2 Health Data Sharing: Context, Focus, and Motivation 2.1 The Evolution of Health Data 2.2 The Need for Enhanced Health Data Sharing 2.3 A Vision for Health Data Sharing 6 | Council of Canadian Academies Health Data Sharing: Context, Focus, and Motivation | Chapter 2 Chapter Findings • With health systems in crisis, health data and their exchange present an opport.